Category Archives: Lupus

A Huge Plea For Help So That I Can Afford Life-Saving Meds

A Huge Plea For Help So That I Can Afford Life-Saving Meds

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I’m really not good when it comes to asking for help, and repeating that plea. But, here I am, putting out my hand like Amanda Palmer says we should. It is a hand that is going to go out often because, to be very frank, I don’t want to die. If I don’t find web design and development work, and soon, I have a 95% chance of throwing a clot and having a stroke; 80% chance that I’m going to die. I’m not sure I can properly stress how dire things are at the moment. It’s truly life or death right now. Read More

I Really Really Need Your Dietary Suggestion And Help

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I’m in desperate need for some help with food suggestion. Before I get to the nature of this help, some backstory. On Tuesday, I developed a rash on my chest. By the next morning, it had spread to my torso, back, and arms. At first, I didn’t think too much about it because living with… Read More

The Blame Game and Coping In New Situations

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Being a parent isn’t easy, not even in the best of circumstances. Every family has its own share of trials, with new situations cropping up in the most inconvenient of times — which is whenever trials happen. If your family comes with built-in trials, then… well, things can get tricky. I am finding myself in… Read More

Lupus, You’re Such A Pain In The Jaw

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It’s been a while since I vomited here. I’ve been extraordinarily busy. This is not the result of too much work, though some may argue that it is. It is the result of a series of “little” lupus hiccoughs that have been causing “little” setbacks in work. These “little” setbacks start to pile up. Then,… Read More

How I Survive Lupus (AKA My 12 Step Programme)

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Note: The following was originally written for The Lupus Magazine. As it is no longer online and I would still like people to be able to read the articles I wrote for that magazine, I am dumping them all here. Originally published May 2011. — The past month, Lupus has been trying to kick my… Read More

An Ode To An Overworked Lupie

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Note: The following was originally written for The Lupus Magazine. As it is no longer online and I would still like people to be able to read the articles I wrote for that magazine, I am dumping them all here. Originally published March 2011. — To say I have too many things on the go… Read More

Collateral Damage – The Dark Side of Lupus

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Note: The following was originally written for The Lupus Magazine. As it is no longer online and I would still like people to be able to read the articles I wrote for that magazine, I am dumping them all here. Originally published February 2011. — Up until a short time ago, I had no idea… Read More

From Caterpillar To Butterfly

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Note: The following was originally written for The Lupus Magazine. As it is no longer online and I would still like people to be able to read the articles I wrote for that magazine, I am dumping them all here. Originally published January 2011. — It is a New Year. This is a time when… Read More

Building Your Online Lupus Community

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Note: The following was originally written for The Lupus Magazine. As it is no longer online and I would still like people to be able to read the articles I wrote for that magazine, I am dumping them all here. Originally published December 2010. — We are a community. A community filled with more diverseness… Read More

The Lupus Safeword

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Note: The following was originally written for The Lupus Magazine. As it is no longer online and I would still like people to be able to read the articles I wrote for that magazine, I am dumping them all here. Originally published October 2010. — Safeword: A safeword is a codeword or series of codewords… Read More